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Thursday, December 18, 2008

It ain't called chronic for nothing

Rock. Me. Hard place. That's where I'm at right now with the whole MS thing.

I'm due for new meds, which can't just be picked up at your family friendly pharmacy. Nope. Gotta order them through the insurance company's specialty pharmacy, which really isn't that big of a deal actually. They're shipped directly to me three-month's supply at time. Pretty simple. But not when your disease and the said specialty pharmacy are conspiring against you.

Here's the problem:
There's a good chance that those oh-so-friendly shots I'm taking aren't actually curbing the disease. At my last MRI, my noggin showed new lesions. New lesions can mean more disability faster, quicker, and stronger. Okay, no big. I deal well. Probably too well. So at the end of this month, I'll have new MRIs done ($$$) to see if there are even more new active lesions. I'm just about betting there are considering my whole numb, burning foot issue (which by the way seems to have gone away!). Note: The symptom can go away, but that doesn't mean there are not any active lesions. If there are, my doc wants me to go to a new medication. The once-a-day ouch kind. But I also need to renew my current prescription right now with my doctor.

So: I need to call my doctor for a new prescription for a medication that most likely I won't be taking for the next three months. Call my specialty pharmacy to order not three months (standard), but one month in the event that I will switch medications after my next doctor's appoint to review the oh-so-fun MRIs I take at the end of the month. Here's where it could be easier on me: Why the hell does the pharmacy need a new prescription? Hello, MS is a chronic, incurable disease! I also can't skip this medication because you titrate up slowly to the current dosage.

All this, while I'm busy at work and it's the holidays. And I wonder where my holiday spirit is. Bah humbug!

Wednesday, December 17, 2008

Thursday, December 11, 2008

Custom-fit jeans?


Perhaps. For $135.

I have a stack of what are now my skinny, I'll-wear-you-again-someday-I-hope jeans. All in good condition. I'm lamenting you size 4, glaring size 6 fat in the face.

Tuesday, December 9, 2008

There's fabric, and then there's fabric


I have discovered: Tula Pink fabric and her new line—Neptune. Nautical, fresh yet calm colors. Color me I-need-a-bag-right-now!

Sunday, December 7, 2008

My favorite 5 yoga poses

There are some poses that I love sinking my teeth into. They probably come more natural to me than any other poses, which means I can clear my mind and really just breathe in the poses. In no particular order, here are my favorite five poses:

1. Setu Bandha Sarvangasana
2. Utthita Parsvakonasana
3. Utthita Trikonasana
4. Anjaneyasana
5. Eka Pada Rajakapotasana

Friday, December 5, 2008

Etsy want: TastySuite vinyl wall art


I gotta tip that I should check out TastySuite's vinyl wall art because there's one that Jonathan would especially appreciate. I love all the variations! So mod and so fun. I need one that says "goodnight. sweet dreams. i love you"—that's the phrase Jonathan and I say to each other every night.

Wednesday, December 3, 2008

Listening to: Ting Ting's That's Not My Name



Does anyone else hear a modern Hey Mickey (you're so fine, you're so fine you blow my mind)? Compare: